Portuguese adaptation of the Chronic Heart Failure Knowledge Questionnaire (KQCHF).

BACKGROUND: A patient's knowledge of heart failure (HF) is associated with better outcomes. The more information patients have about their illness, the less likely they are to be readmitted to the hospital. Such knowledge includes the cause, symptoms, probable duration, and expected evolution of the clinical picture. In Portugal, a tool for testing patient knowledge is an unmet need. Therefore, this study aimed to adapt and test the Chronic Heart Failure Knowledge Questionnaire (KQCHF) for the Portuguese context. METHODS: This work includes three cross-sectional studies. In Study 1, subjects were divided between before and after receiving information about HF. In Study 2, participants answered the questionnaire before and after reading the brochure. In Study 3, KQCHF was applied to patients with HF. Studies 1 and 2 were carried out in the general population. Study 3 was carried out with HF outpatients. Convenience sampling was applied to participants in the three studies. RESULTS: In Study 1 (n = 45), those who received information had better scores (9.2 ± 1.9) than those who did not (6.0 ± 2.3). In Study 2 (n = 21), the scores were higher after reading the brochure (10.4 ± 1.7 vs. 6.5 ± 2.9). In Study 3 (n = 169), women had better scores than men (9.1 ± 2.1 vs. 8.3 ± 2.2, overall: 8.5 ± 2.2), and knowledge was correlated with education (r = .340, p < .001) and age (r = -.170, p = .030). CONCLUSION: The Portuguese adaptation of KQCHF captured relevant knowledge about HF and has shown promising results for clinical and research purposes. The questionnaire can be useful in assessing HF patients' knowledge of their disease and as a basis for the implementation of general and personalised educational strategies to improve HF knowledge and, therefore, promote health literacy and self-care.

Influence of transitional nursing on the compliance behavior and disease knowledge of children with purpura nephritis.

BACKGROUND: Purpura nephritis, also called Henoch-Schönlein purpura nephritis, is a systemic disease with small dead vasculitis as the main pathological change. AIM: To observe the influence of transitional nursing activities on the compliance behaviors and disease knowledge of children with purpura nephritis. METHODS: A total of 82 children with purpura nephritis were included and divided into a general nursing group (41 children) and transitional nursing group (41 children) using the envelope method. The general nursing group received routine nursing care, while the transitional nursing group received transitional nursing care. The behaviors, knowledge of the disease, and self-management ability of the two groups were evaluated after nursing care was provided. RESULTS: The scores of four items (self-care ability, self-responsibility, health knowledge level, and self-concept) in the transitional nursing group were significantly higher than those in the general nursing group. CONCLUSION: Transitional nursing can directly improve the disease knowledge level and self-management ability of children with purpura nephritis and effectively reduce complications.

Conhecimento do diabetes tipo 2 e relação com o comportamento de adesão ao tratamento / Knowledge about type 2 diabetes and its relationship with the adherence to treatment / Conocimiento del diabetes tipo 2 y relación con el comportamiento de adhesión al tratamiento

O Diabetes Mellitus (DM) tipo 2 pode ser prevenido e controlado desde que a pessoa faça algumas adaptações em seu estilo de vida. O conhecimento do paciente frente a doença pode contribuir com a baixa adesão ao tratamento, ou seja, não seguir as recomendações passadas pela equipe de saúde. O objetivo deste estudo foi relacionar o conhecimento do participante sobre o DM tipo 2 e comportamento de adesão ao tratamento. Foi realizada uma pesquisa qualitativa com cinco diabéticos que responderam a uma entrevista semiestruturada. Após realizada uma análise de conteúdo observou-se que a comunicação do diagnóstico não foi considerada fator de não adesão. Os participantes conseguiram promover mudanças em costumes cristalizados há algum tempo sem alto custo de resposta e apresentaram comportamento de adesão para autocuidado, por exemplo: exercícios físicos e uso de medicação. Em contrapartida, observou-se baixa adesão para seguir dieta alimentar prescrita por profissional de saúde.

Diabetes Mellitus (DM) type 2 can be prevented and controlled as long as the person makes some adjustments in their lifestyle. The knowledge of the patient regarding their condition can contribute with low adherence to treatment that is, not to follow the recommendations passed by the health team. The objective of this study was to relate the participant's knowledge about type 2 DM and treatment adherence behavior. Five patients were asked to take part in a qualitative investigation in which they answered a semi-structured interview. A content analysis was performed and it was observed that the communication of the diagnosis was not considered a nonadherence factor. Participants were able to promote changes in crystallized customs for some time without a high cost of response and they presented adherence behavior for self-care, for example: physical exercises and medication use. On the other hand, there was low adherence to follow the diet prescribed by health professionals. K

La Diabetes Mellitus (DM) tipo 2 puede prevenirse y controlarse siempre que la persona realice algunos ajustes en su estilo de vida. El conocimiento del paciente contra la enfermedad puede contribuir a una mala adherencia al tratamiento, o sea, que no siguen las recomendaciones aprobadas por el equipo de salud. El objetivo de este estudio fue relacionar los conocimientos de los participantes de la DM tipo 2 y el comportamiento de la adherencia al tratamiento. Se realizó una investigación cualitativa con cinco diabéticos que respondieron a una entrevista semiestructurada. Después se llevaron a cabo análisis de contenido y reveló que la notificación del diagnóstico no se consideró factor de no adherencia. Los participantes fueron capaces de hacer cambios en las costumbres cristalizados durante algún tiempo sin respuesta costoso y mostraron comportamientos de adhesión para el cuidado personal, por ejemplo, el ejercicio y la medicación. Por otra parte, se observó una baja adherencia a seguir la dieta prescrita por un profesional de la salud.

Chronic myeloid leukemia patients' adherence to peroral tyrosine kinase inhibitors compared with adherence as estimated by their physicians.

PURPOSE: To evaluate chronic myeloid leukemia (CML) patients' adherence to peroral tyrosine kinase inhibitors in Finland and to compare this with adherence as estimated by their physicians. Other aspects studied included how patients' knowledge of the disease and its treatment influence adherence. MATERIALS AND METHODS: A total of 120 CML patients were contacted between June 2012 and September 2013 in eight secondary or tertiary care hospitals in Finland. Of these, 86 participated in the study. This covers approximately 20% of all Finnish CML patients. The mean age was 57.8 years and 52% were male. Of the patients, 79.1% were using imatinib, 10.5% dasatinib, and 10.5% nilotinib. The patient-reported adherence (experienced adherence) was evaluated using the eight-item Morisky Medication Adherence Scale (MMAS). In addition, the treating physicians were asked to give their subjective opinion on their patients' adherence (observed adherence). The experienced adherence was compared with the observed adherence using a three-level rating system (high, medium, low). All patients were personally interviewed and their demographic data collected. The statistical analysis of the data was based on descriptive statistics presented as frequencies, percentages, means, and medians. The kappa coefficient was calculated between the patient's and the doctor's assessment of adherence. RESULTS: A total of 23% (20/86) of the patients were fully adherent according to the MMAS, while physicians evaluated 94% (80/86) of the patients as fully adherent. The physicians' estimate was too optimistic in 73% of cases. The discrepancy was confirmed by a kappa value of -0.004. The patients' knowledge of the disease and its treatment was poor in all adherence levels. CONCLUSION: The patient-reported adherence to tyrosine kinase inhibitor treatments in Finland was found to be the same as that found in the majority of previous studies. However, there seems to be a very weak agreement between the patient's and the physician's assessment of adherence. This study suggests that physicians overestimate the adherence of CML patients and base their assessment primarily on the clinical treatment response.